{"id":52179,"date":"2021-06-24T08:46:00","date_gmt":"2021-06-24T08:46:00","guid":{"rendered":"https:\/\/www.hospitalarias.org\/en\/?p=52179"},"modified":"2021-06-24T08:46:00","modified_gmt":"2021-06-24T08:46:00","slug":"the-meaning-of-life-and-the-promotion-of-hope","status":"publish","type":"post","link":"https:\/\/hospitalarias.org\/en\/the-meaning-of-life-and-the-promotion-of-hope\/","title":{"rendered":"The meaning of life and the promotion of hope"},"content":{"rendered":"\n

Dr. F\u00e1tima Gon\u00e7alves, pastoral care provider at the Sisters Hospitallers\u2019 Casa de Sa\u00fade da Idanha in Portugal<\/a> since 2004, discusses her work in the palliative care unit; specifically, how patients experience the end of life. <\/h3>\n\n\n\n
\"\"<\/figure><\/div>\n\n\n\n

As\nhead of Pastoral Care services at the Sisters Hospitallers\u2019 Casa de Sa\u00fade da Idanha\nin Portugal, I want to share my experiences with patients as they approach the\nend of life in the palliative care unit. I will try to be as faithful as\npossible: faithful to the sick, faithful to myself, and I guess, faithful to\nGod. Faithful to the sick because despite our empathy, compassion, and\nsolidarity, we will never know what they feel when they experience losses, when\nlife eludes them, and when the hope they once felt ceases to echo in their\nthoughts. Faithful to myself, so as not to succumb to the temptation of\nidealising or embellishing the \u2018journey\u2019 that begins before the patient is\nadmitted to the palliative care unit – a journey with its own heavy baggage\nthat can be difficult to bear. And even to interpret their spirituality using\nmine as a reference and primary example. Then faithful to God because though\nwell-equipped with care techniques and other expertise, I run the risk of\nbelieving I am self-sufficient when, in reality, without Him I am just a good technician.\nAnd I want to be more, much more, because it is the only way in which my\ninvolvement in promoting hope and the meaning of life makes sense.   <\/p>\n\n\n\n

Pastoral intervention in the St. Benedict Menni palliative care unit is based on the Hospitaller care model that shapes the process and lays the foundations for our provision of distinctive, humanised healthcare, promoting the dignity and value of human life in all situations and stages, and fostering a sense of hope that gives life meaning. <\/strong><\/p>\n\n\n\n

In the individualised monitoring I carry out on\npatients in the final stages of life, I slowly realise that their perception of\nwhat is fundamental in life changes, it is not always about wanting long-awaited\ndreams and wishes, but rather being open to a life-changing vision not just for\nthe patient, but for their family and healthcare providers.<\/p>\n\n\n\n

Since 2006, we have helped nearly 1500 patients, 99%\nof whom lived their final days with us. It is hard to know if ultimately they\nexperienced acceptance, that conscious and calm acceptance. In cases of severe,\nincurable disease (mainly neoplasms), when metastasis invades the brain and the\nsedative effect of certain medications interferes with the patient\u2019s\nconsciousness, I can attest that they act as facilitators of what we can call\n\u2018passive acceptance,\u2019 in which the life force surrenders and ceases all\nresistance. But before giving in, whether voluntarily or involuntarily, there\nis a whole life that must be lived to the fullest in a short amount of time. And\nI am a witness of that! In the religious, and sometimes spiritual, service I\nprovide in the PC unit, I see moments of peace for the ill, such as reconciliation\nwith family members, reconciliation with oneself (when the vicissitudes of life\ncause low self-esteem, discouragement, and self-pity), and reconciliation with\nGod, after having turned away because they did not truly know him.<\/p>\n\n\n\n

I\nspecifically remember a patient who reaffirmed the importance of an attentive\nand involved Pastoral Care service. He was lucid and communicative. During the\npastoral welcome, he confessed to being a Catholic by tradition. However, though\nhe appreciated my presence, he said he did not want religious care. Two days\nlater, I learned he had asked for a priest to visit him. At first it seemed\nstrange to me, so I spoke to him to find out exactly what had happened, and I called\nfor the hospital chaplain to visit him immediately. He took the sacrament of\npenance; his general state of health declined and death drew closer. His pain\nintensified. By seeing him on several pastoral visits, I noticed an existential\nsuffering that interfered with the regulation of his continuous and progressive\npain. <\/p>\n\n\n\n

He\nfelt he had not been a good father and it weighed heavily upon him at that\ncritical point in his life. After all, I had a father of two children in front\nof me. One was the favourite son, and the other was neglected for nearly a\nlifetime. The favourite son had abandoned him, while the other, now an adult who\nis aware of his father\u2019s situation, did everything possible to ensure he received\nthe best care. Already in the pre-mortem stage, the father and the neglected\nson met. They looked at each other, but could not touch each other… and a\nprofound silence enveloped their words. One week later, the father passed away.\nThis was the son who accompanied him in his final moments and who arranged the\nfuneral. The favourite son never visited his father throughout all his pain and\nsuffering. While he still in the unit with his deceased father, I kept the son\ncompany. He felt a sense of ambiguity: he had performed his duty, but felt as if\nsomething was missing. I told him his father had called for a priest to confess.\nHe teared up, thanked me nervously and said, \u2018I felt like he wanted to tell me\nsomething but couldn\u2019t. He seemed different\u2019.<\/p>\n\n\n\n

This\nanecdote clearly demonstrates the importance of spiritual end-of-life care as\nan instrument to facilitate reconciliation in a person\u2019s life, to tend to\nunfinished business. I do not know if the patient\u2019s heart was at peace, but for\nthe son, the fact that his father asked to confess was tantamount to asking for\nforgiveness, albeit indirectly, and if he had had more time left, he may have\neven gotten that to. Regardless, what he did served as a salve for his son. It\nis my belief that this conciliatory conclusion was only possible because the\ninstitution offered this resource, with the entire team involved and attentive\nto the patient\u2019s spiritual needs. Thanks to our experience, we can understand\nthe importance of accompanying family members and providing peace and\ntranquillity after the death of a loved one.<\/p>\n\n\n\n

The challenges of the pastoral approach <\/h3>\n\n\n\n

There are many situations in which pastoral service, in conjunction with a multidisciplinary team, makes a difference in the holistic care of patients. For most patients, family is what gives meaning to life. It is family that provides hope and inspires us to pray to God for the chance to live a little longer to help our children, to see our grandchildren grow, to love a lifelong companion. In relationships such as these, there is always more we can do or say\u2026 <\/p>\n\n\n\n

I\nwould also like to mention Ms Rita. She was a single woman with no children from\nAlentejo, a die-hard land reformist She was never classed as proletarian, but she\nwas able to enjoy the richness of her peers. She came to us with low\nself-esteem, intensified by the lack of pain management. She was filled with bitterness\nand rage and would repeat over and over how her bosses exploited her. She was 71,\nthe youngest of her family, and never had the opportunity to meet her nieces and\nnephews, nor did she have any friends to come visit her. But she did have dreams:\nto learn how to embroider Arraiolos rugs, something she had never been allowed\nto do as a young girl (\u2018That was for rich girls\u2019 she would say); to make a rug\nfor the doctor who treated her like a real person during her most recent hospitalisation;\nto go to the cinema and see a film; and to go out on the street in a\nwheelchair. <\/p>\n\n\n\n

In the month and a half that she was in the hospital,\nshe managed to fulfil these wishes. Other wishes, known only to her, perished\nalong the way. But I would like to share how this lady influenced my way of\nseeing and appreciating the little things. When I took her for a walk in a\nwheelchair through the garden\u2014slowly because the vibration caused her pain\u2014she\ndrew my attention to the nooks and crannies I had never noticed, despite\nwalking passed them every day: this or that tree, that she did not know about,\nbut were so beautiful in her eyes. She had eyes blue as the ocean that she had\nnever seen. The birds chirping, the small fountain into which she dipped a cork\nspoon (un cocharro<\/em>) popular in the\nAlentejo region to sip water. These short strolls were her opportunity to\ntravel back in time and, with my help, to rediscover fond memories. She had a\nlonely life, but she died in the company of a group of professionals who cared\nfor her with affection and made her feel like a human being.  <\/p>\n\n\n\n

Lastly, I want to highlight the importance of the\naffection with which many of this centre\u2019s workers welcome pastoral care and\nits integration into the multidisciplinary care teams as a distinctive element\nin the therapeutic process that enhances intimacy and the healing of the\nsick.    <\/p>\n","protected":false},"excerpt":{"rendered":"

Dr. F\u00e1tima Gon\u00e7alves, pastoral care provider at the Sisters Hospitallers\u2019 Casa de Sa\u00fade da Idanha in Portugal since 2004, discusses her work in the palliative care unit; specifically, how patients experience the end of life. As head of Pastoral Care services at the Sisters Hospitallers\u2019 Casa de Sa\u00fade da Idanha in Portugal, I want to […]<\/p>\n","protected":false},"author":1,"featured_media":52184,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[588],"tags":[],"class_list":["post-52179","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cat-news"],"acf":[],"yoast_head":"\nThe meaning of life and the promotion of hope - Hermanas Hospitalarias<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hospitalarias.org\/en\/the-meaning-of-life-and-the-promotion-of-hope\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The meaning of life and the promotion of hope - Hermanas Hospitalarias\" \/>\n<meta property=\"og:description\" content=\"Dr. F\u00e1tima Gon\u00e7alves, pastoral care provider at the Sisters Hospitallers\u2019 Casa de Sa\u00fade da Idanha in Portugal since 2004, discusses her work in the palliative care unit; specifically, how patients experience the end of life. 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